Monday, August 24, 2009

Kids of Courage!!!!!

Hi everyone who is coming over here from the Kids of Courage site! I feel so special? honored? overwhelmed? that KOC decided to put my little ole blog in the "press and letters" section. So I figure that if you're here, you might as well know a tad about who I am and what this little ole blog is all about. I started this blog about two years ago, originally for my immediate family. Unfortunately, we live far from much of my family, and they were all getting irritated at me for not sharing all of Dovi's medical stuff on a regular basis. Dovi, now age 11, has FD (Familial Dysautonomia). You can read more about him here. We've had quite the bumpy ride with Dovi. But if you're here from the KOC website, in all probability you either (a) have a kid with FD or another nasty illness, (b) love or care for a kid with FD or another nasty illness, (c) are a counselor for a kid with FD or another nasty illness. So you know where I'm coming from. Back to my blog. So I started the blog about Dovi. It quickly grew to a rather identity-challenged blog, as I write about all things that interest me-my family, Dovi stuff, couponing, home decor, and other random stuff.


Also, click over here to read an amazing guest post that I am honored to publish from Sara Miriam Kaplan, the head nurse from KOC.

Now...on to my original blog post.

Thursday went well. Flew down with the boy. Waited with him for the Kids of Courage people. Left him with them. Flew home. Was tired.

I didn't realize there were soooo many kids going on the trip-there are 89 Kids of Courage! It must be total, utter madness.

As a matter of fact, it IS total, utter madness and mayham.

The Kids of Courage website is awesome-they put up pictures every day-which unfortunately I cannot share with all of you because you have to be a parent to log in.

But since I can't share the pictures with you, I'll share the two news reports that aired about the trip.

Click HERE

and HERE

I cannot even begin to envision the insanity that must have been that chartered flight. I wish Dovi could have been on it-oh well, instead we got out lovely flight from Chicago.

Friday was Sea World, yesterday was a Tampa Bay Rays game, and today is the Magic Kingdom. Not sure what's happening after that.

It's a rough life being Dovi, that's all I have to say.


FunkyFrum said...

Oh boy! Sounds like Dovi is going to have the time of his life.

Shosh said...

those were awesome videos. and i cannot wait to hear dovi report back everything that he did. u should start sending him with a digital camera and instruct raphi to take numerous videos.

porushmom said...

The pictures are a great idea. You should see the pictures Dovi takes on my camera!

Anonymous said...

wow, that looks like an amazing trip! i had never heard of KOC, but i just read some of the press coverage...maybe you guys will go to israel in 2010?!


Miriam said...


Anonymous said...

Amazing videos! But where was Raphi???