Wed was sleep medicine after the debacle of the sleep study. He's going on BiPap (which is a brand name-like Kleenex-who knew?!). They've sent us home with the mask for him "to get used to" and they'll be calling me with the date that we're going to come in to the PICU and sleep there one nigh while they titrate the settings.
Today was endocrine-at the insane hour of 8:20am-and we were on time! It was to discuss the Pamidronate and a little discussion of his height/growth hormone. We had another bone age done and whe's going to give us orders for labs, and then we will come up with a course of treatment. I didn't 100% understand what she told me, but there is a corollation between growth hormone deficiency and bone density issues-so putting him on growth hormone (in addition to Pamidronate) might actually help his bone health.
So we've got a few plans but no action yet.
Thursday, June 26, 2008
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