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Tuesday, February 1, 2011

Dovi's New Wheels!

Well, it hasn't arrived yet.

But in about weeks, Dovi should be the proud owner of this!


It's a Quickie 2 wheelchair...

I'm so excited! I must say it's a little sad what excites us special needs mommas.


Dovi currently has a Maclaren Major



and a Convaid Safari

Neither one is really meeting our needs-the Convaid is 6 years old and doesn't fit him so well (and frankly a royal PITB to fold) and the Macalaren is too small and...ahem....a little squeaky. You can hear Dovi coming from a block away in the Maclaren.

So.

Our great hope is that he will be able to wheel himself in this snazzy new chair. He chose copper color.

Hooray!

Monday, January 31, 2011

Thank you!!!


To our Dearest Friends,

So, here we go again.

As we have done for the past five years, we are again taking to the streets and running with Team Lifeline to raise money for Camp Simcha and Camp Simcha Special. The experiences we have had being a part of Team Lifeline in Miami have been beyond compare and this year will be no exception. Running with Team Lifeline in Miami has become our way of giving back to Chai Lifeline for all that they have done and continue to do for our Dovi.

This year however is a little different. Living in Chicago you would think that there would be no place we would rather be during the long cold winter than South Florida. To be honest we assumed all along that that is where we would go.

Then Team Lifeline announced that this year they would be participating in the first ever Jerusalem Marathon.

That’s right, JERUSALEM MARATHON.

With that announcement our decision was made. On March 25th 2011 we will be joining Team Lifeline in Israel in support of all of the special children of Chai Lifeline.

In order to make this possible we are turning to you, our nearest and dearest friends and family. Words alone do no tell the story of just how important Chai Lifeline and Camp Simcha special are to Dovi. Camp has enabled Dovi to put aside all of his daily challenges and just be a kid. At Camp he is no longer the only kid with a G-Tube who can’t put his face in the water.

In addition to running for Dovi, we are dedicating this year’s marathon to the amazing counselors and kids of Bunk 17.

Yakov, Raphi, Yoeli, Nachman, and Shimon are the best counselors an FD kid could hope for!











This year, we are running for them as well as Dovi and his wonderful friends Ezra, Ben, and Eli.








The incredible experience that is Camp Simcha and Camp Simcha Special are a result of the tireless love and devotion of the counselors and staff. Please join us in making sure that Dovi, along with all of his friends will always have Camp Simcha and Camp Simcha Special to look forward to.

Our goal this year is to raise $10,000.

To learn more about all the amazing things that go on at Camp Simcha Special please click here.

To see a little more of Camp Simcha Special, watch these videos!






To see more about Team Lifeline, watch this video! Ooh look! My brother, Dovi, and I are at 0:27!






To sponsor us please click here


Thank you from the bottom of our hearts.

Love, Benjie and Sara

Wednesday, January 26, 2011

Team Lifeline ISRAEL!!!!!


I cannot speak.

I am so excited.

I am so terrified.

I cannot believe what I am about to tell you.

If all goes well, Benjie and I will be going to ISRAEL!

I haven't been in 11 years.

I'm one of those people who wants to lay down and kiss the earth when they arrive.

I haven't been since Dovi was 2.

How/Why are we going?

Well look at my title for this post!

Yes, Team Lifeline will be participating in the First Annual Jerusalem Marathon.

Faint.

Obviously, we did not run Miami this year (it's this coming Sunday...sniff sniff). We didn't run because there was no way to train what with Dovi's Bar Mitzvah occupying every moment of our lives.

But now I am free! Free!

So I am training.

And training.

I am watching shows on Dovi's iPad as I run (Modern Family? OMG hysterical, thanks Shosh) and trying to envision the amazingness of running for Dovi. In Israel.

Excuse me while I go weep now.

So. Hey? Anyone want to sponsor me?

Click here and enter my name.

I'm going to go faint now.

Monday, January 24, 2011

In Which Sara Gets Deep

Even though I feel like I've been talking to myself recently, I've been thinking about this and want to write it down before I forget it.

I heard a shiur recently where the Rav was speaking about when Yosef HaTzaddik was sold to by his brothers and was taken down to Mitzrayim.

I'm sure most people know the story, but to sum up, in Bereishis, Genesis, Yosef, Joseph, was sold by his brothers as a slave down to Mitzrayim, Egypt. He was sold to a caravan of Yishmaelim who then sold him again and again, until he ended up in Mitzrayim and the whole story of how he rose in power began.

Yosef was sold to Yishmaelim, and it says in the Chumash that they were "bearing spices and balsam" (N'chos, Tzri, and Lot). Now we all know that the Torah does not use any superfluous words. So why on earth are three words "wasted" on telling us what the caravan carried? Who cares?

Rashi says that the Yishamaelim generally carried petroleum and resin, foul smelling items, in their caravans. But since Yosef was a Tzaddik, a righteous man, HaShem made the Yishmaelim carry sweet smelling spices "so that he should not be harmed by the foul odor".

When you read this Rashi, it seems kind of odd. Yosef was just sold by his brothers into slavery, and the miracle that HaShem chose to do was for him to not smell foul odors on his way down to Mitzrayim? How about a miracle that he not be sold? Or that he escape somehow? Why on earth was THIS the miracle?

So the answer, said the Rav that I heard speak, was this. It was predestined that Yosef should go down to Mitzrayim to set into motion the years of slavery and redemption, culminating in the Jewish people receiving the Torah. Yosef's years of servitude and anguish in Mitzrayim, for reasons that we do not understand, had to occur. But G-d gave him a blessing, a sign on his way down to those years of darkness. Yes, you will experience pain and servitude. You will not be with your family. But I will send you down to this experience with a sweet smelling accompaniment. I, G-d, will be with you all the time. Look how I made you comfortable for this hard, hard journey.

This got me thinking about the journey that I have been on with my Dovi. Yes, it is often a journey of darkness. Of pain. Of anguish, watching Dovi struggle to do all that his peers do effortlessly. To run down the street. To climb the stairs. FD is not all bad, but it IS a kind of servitude, servitude to Dovi's body that does not do what it is supposed to do.

But look!


Look at the beautiful b'sammim, spices that we have been given. Dovi has the most wonderful, beautiful personality. I often say that Dovi lacks a Yetzer HaRah, an evil inclination. Everyone who meets Dovi loves him. He is beautiful, both inside and out.



His demeanor is so amazing and enjoyable-how can you not just marvel at the beautiful N'chos, Tzri, and Lot that we have been blessed with along the journey.



HaShem has given us such a blessing. We truly have a sweet accompaniment. We have been made comfortable for this long, hard journey.


and He is with us every step of the way.

Thursday, January 20, 2011

Finally, at long last

I was able to upload the videos of Dovi skiing.








I tip my hat to Raphi for being able to both ski down a mountain and video Dovi at the same time. If I did that I would have two broken legs.

Enjoy!

Tuesday, January 18, 2011

This is what it's all about.



If you had ever told me that my profoundly disabled son would have been able to do this:



and this:

and this:


and this:


I would never have believed you.

Dovi's ski trip with Kids of Courage last weekend was truly a dream come true.

Dovi conquered his illness with adventure.

Thank you!